{"id":3673198,"date":"2023-03-21T14:50:37","date_gmt":"2023-03-21T13:50:37","guid":{"rendered":"https:\/\/www.chu-poitiers.fr\/?page_id=3673198"},"modified":"2026-03-09T15:48:10","modified_gmt":"2026-03-09T14:48:10","slug":"maladies-rares-accueil","status":"publish","type":"page","link":"https:\/\/www.chu-poitiers.fr\/en\/maladies-rares-accueil\/","title":{"rendered":"Maladies rares &#8211; Accueil"},"content":{"rendered":"<div class=\"wpb-content-wrapper\">[vc_row][vc_column][vc_column_text]\n<p style=\"text-align: center;\">Le CHU de Poitiers compte<strong> 47 centres de r\u00e9f\u00e9rence et de comp\u00e9tence<\/strong> prenant en charge des maladies rares et se mobilise pour am\u00e9liorer la prise en charge de ces pathologies et faire avancer la recherche.<\/p>\n[\/vc_column_text][vc_row_inner][vc_column_inner width=&#8221;1\/2&#8243;][vc_icon icon_fontawesome=&#8221;fa fa-user-o&#8221; color=&#8221;custom&#8221; align=&#8221;center&#8221; css=&#8221;.vc_custom_1679320369831{margin-bottom: 5px !important;border-bottom-width: 0px !important;padding-bottom: 0px !important;}&#8221; custom_color=&#8221;#05506d&#8221;][vc_column_text]\n<p style=\"text-align: center;\">Vous \u00eates un <strong>patient ou un proche de patient<\/strong>, atteint d\u2019une maladie rare ou en attente de diagnostic et vous souhaitez\u00a0:<\/p>\n<ul>\n<li>Contacter une structure comp\u00e9tente pour suivre les personnes atteintes de maladies rares<\/li>\n<li>Obtenir des informations relatives aux maladies rares<\/li>\n<li>Contacter une association de personnes atteintes de maladies rares<\/li>\n<li>Suivre un programme d\u2019\u00e9ducation th\u00e9rapeutique en lien avec une maladie rare<\/li>\n<\/ul>\n[\/vc_column_text][\/vc_column_inner][vc_column_inner width=&#8221;1\/2&#8243;][vc_icon icon_fontawesome=&#8221;fa fa-stethoscope&#8221; color=&#8221;custom&#8221; align=&#8221;center&#8221; css=&#8221;.vc_custom_1679320391399{margin-bottom: 5px !important;border-bottom-width: 0px !important;padding-bottom: 0px !important;}&#8221; custom_color=&#8221;#05506d&#8221;][vc_column_text]\n<p style=\"text-align: center;\">Vous \u00eates <strong>m\u00e9decin traitant<\/strong> et vous souhaitez\u00a0:<\/p>\n<ul>\n<li>Orienter un patient vers une structure comp\u00e9tente pour prendre en charge les maladies rares<\/li>\n<li>Contacter une structure comp\u00e9tente pour prendre en charge les maladies rares<\/li>\n<\/ul>\n[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row][vc_column width=&#8221;1\/3&#8243;][vc_btn title=&#8221;Maladies rares<br \/>\nau CHU de Poitiers&#8221; 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